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Summer is near and that means so are the bugs. With kids, especially kids with disabilities, we have to be very aware of chemicals and harsh toxins that we may use. Here are some safe do-it-yourself (DIY) ideas to keep the bugs off and enjoy your summer.
Categories: Family Support
I have met many families (including my own) that rely on home health in one form or another. Here is our family’s experience with finding the right fit for a nurse for our daughter.
Categories: Diagnosis & Health Care
When you have a child with disabilities, you find yourself in a whole new world. You meet people you probably would have never known had it not been for your child. Some of these new relationships become as strong (or stronger) than those you have with your own family.
Categories: Family Support
Do you have a child with medical complexity in your home? Here are some ways to have visitors follow house rules to keep your child safe.
Categories: Family Support
We’ve all been there: We get a new diagnosis for our child and we run straight to Google. How do you know what sites to trust and which sites are bogus? There is so much information out there. Trying to make your way through it all can be confusing.
Categories: Diagnosis & Health Care, Family Support
When you have a child with disabilities, it’s easy to spend a small fortune on medical equipment, home modifications, etc. There are a few items however that won’t break the bank but will make life much easier.
Categories: Diagnosis & Health Care, Family Support
Parents of children with disabilities often ask me about programs that help cover the cost of the items their kid needs. Here are a few places to start looking for financial assistance.
Categories: Family Support
After my daughter Casey passed away in 2016, I knew that life would never be the same. I understood that there would be good days and bad days. I also totally expected different things to trigger emotions. Some of the triggers I never saw coming though.
Categories: Family Support
Some people refer to their close friends as their "tribe" or their "extended family." In the disability world, I have heard moms refer to each other as "sister by circumstance." Regardless of what you call them—even if you have nothing else in common other than your kids—having another mom who gets it is so important.
Categories: Family Support
Medical supplies are a funny thing. Some items we get with ease and they start to pile up. Others seem near impossible to get our hands on. Here are some tips to help make sure that your child has the supplies they need.
Categories: Diagnosis & Health Care, Family Support