When it comes to your child and their medical needs, there is no such thing as a dumb question. Here’s how I think about asking questions in medical settings as a parent of a child with a disability and a nurse.
Categories: Diagnosis & Health Care
It’s easy to get caught up in the social challenges that children with disabilities face. But when we consider the progress made over the last 80-90 years, we can be grateful for how far we have come.
Categories: Family Support
I was lucky to be able to get my daughter in and out of our vehicle throughout her life. However, many children with medical complexity require ambulance transportation to get to and from appointments.
Categories: Diagnosis & Health Care
COVID has impacted the entire world in one way or another. The medical community has been changed forever. And nursing care for children with medical complexity has become quite scarce.
Categories: Family Support
Over the past two years, the nursing shortage has become a bigger and bigger issue.
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As a mom to a child with complex medical needs, we hear many people say, “you should be a nurse” or “you should go to medical school.” Eventually, many of us find ourselves doing exactly that.
Categories: Family Support
When you throw a rock in a pond, the ripples spread out, sometimes in large areas. Now that I am working with many of the people who once cared for my child, I have seen her ripple at work in so many ways.
Categories: Family Support
Losing a child is the worst possible thing a person can experience. There are a lot of obvious reasons, but one that hits many bereaved families by surprise is the huge guilt that comes with moving forward without them.
Categories: Family Support
It’s easy to get caught up in all that you do as a parent of a child with special healthcare needs. Be sure to keep sight of yourself.
Categories: Family Support
If you are like many parents who have a child with a disability, the idea to start a nonprofit has crossed your mind. Here are some things to help you decide if this is something you really want to do.
Categories: Family Support