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Navigate Life Texas: Resources for kids with disabilities and special needs
Navigate Life Texas: Resources for kids with disabilities and special needs
Bell, Blanco, Burnet, Lampasas, Llano, Milam, Mills, San Saba, Williamson
As the parent of a child with mild Cerebral Palsy, I learned that the word “hurry” doesn’t apply to my son, Jason. With motor planning difficulties, hurrying just wasn’t something he could do. I learned to adapt and accommodate our schedule to allow extra time. However, when I found myself in the situation of caring for elderly parents & parents-in-law, and our son, I struggled to find the patience I once had with Jason.
Categories: Family Support
Our son refused to leave our home, so we moved out!
Categories: Transition to Adulthood
Have you ever been asked to join a committee or board? As a parent of a child with disabilities, here’s what I’ve learned over the years about participating in these groups.
Categories: Family Support
When it comes to your child and their medical needs, there is no such thing as a dumb question. Here’s how I think about asking questions in medical settings as a parent of a child with a disability and a nurse.
Categories: Diagnosis & Health Care
Everyone knows that kids with disabilities have a whole team of doctors, nurses, and therapists. However, there are so many more specialists that people may not even realize they need.
Categories: Family Support
What makes a doctor a good doctor or a bad doctor is different for each patient. There are a few things however that all patients consider to be good qualities in a medical provider.
Categories: Diagnosis & Health Care
I have met many families (including my own) that rely on home health in one form or another. Here is our family’s experience with finding the right fit for a nurse for our daughter.
Categories: Diagnosis & Health Care
We’ve all been there: We get a new diagnosis for our child and we run straight to Google. How do you know what sites to trust and which sites are bogus? There is so much information out there. Trying to make your way through it all can be confusing.
Categories: Diagnosis & Health Care, Family Support
After my daughter Casey passed away in 2016, I knew that life would never be the same. I understood that there would be good days and bad days. I also totally expected different things to trigger emotions. Some of the triggers I never saw coming though.
Categories: Family Support
We are all great at following doctor’s orders, making all the needed appointments, filling the medications, doing everything and then some for our kids. When the tables are turned, and we become the patient, things change.
Categories: Family Support