January 30, 2018 | By: Shailen Singh
Categories: Diagnosis & Health Care, Family Support
Recently, we talked to our doctor about our son’s behavioral issues. The doctor said our son checks the boxes for an autism diagnosis. He told us to explore autism-specific therapy.
This knocked me over. I know cerebral palsy (CP), congenital Cytomegalovirus (CMV), and polymicrogyria. I know those things like the back of my hand. I had no idea about autism. I had no idea what to do.
I don’t want my son to be defined by his disability. But his diagnoses help me understand him. To have a new wrinkle thrown in—well, it was difficult to add a new diagnosis.
But I realize now that this diagnosis represents an opportunity. It opens a new set of doors. For example, we thought he was non-verbal because he didn't have the cognitive ability. But with autism, that might change! Grinding his teeth and difficulty sleeping could be related to his autism. We’ve had these questions for a while. And we’re getting them answered!
Our children are like beautiful puzzles. It’s our job to figure out how each piece fits. The more complex the diagnosis, the more complex the puzzle. I love a good puzzle. It feels like this diagnosis put me one step closer to being the dad I need to be.
In short, this new diagnosis is a blessing. It’s a new perspective. I feel like I’m getting to know a whole new side of him. I absolutely love it. Sometimes, life’s surprises are the most meaningful moments.
The Diagnosis and Health Care section offers information on new diagnosis and children diagnosed with multiple disabilities.
The last time my son was in the hospital, it was a children’s hospital. But recently, after he fell out of bed and broke his leg, he was taken to an adult hospital and needed surgery. I’m forever grateful to the doctors and nurses caring for him through it all.
Categories: Diagnosis & Health Care, Transition to Adulthood
Your emergency plans might look different, but no matter how they look, they can make all the difference.
Categories: Family Support
Despite doubt from others, a parent’s careful attention to her son’s verbal and nonverbal cues highlights the importance of listening to children with disabilities and advocating for their needs.
Categories: Family Support