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August 13, 2018 | By: Leslie Curtis
Categories: Family Support
There are very few times when my husband and I have been away from our 16-year-old son who has a disability. Those times have usually been for my medical reasons (which in my opinion doesn't count). If you are a parent, I am sure you can relate.
It's very hard to find someone to watch your child in your absence. And it is so much work preparing for the absence, it's almost not worth it.
It is our 25th wedding anniversary. And after 25 years, my husband and I are running away for 4 nights and 5 days. We are going on a music cruise. With no children…
The planning has already begun. And there is a never-ending list of things to do and prepare. We are so blessed to have our oldest son here to help, along with our 16-year old's provider. I also have family in town. They will be our backup plan if either one of them gets sick or needs help.
The only way I could ever leave my child for 5 full days would be if I knew I was totally prepared. So here are the things I have ready:
I am sure it will take me a day to decompress. I am used to looking at the clock many times a day to see when the next round of seizure medication is due. But my husband and I will refresh over these 5 precious days. Days of remembering why we fell in love and celebrating these 25 years together. This is so worth it!
Here are some other ideas for self-care that you can do on a daily basis.
I have 6 children. Among them, there are quite a few hidden disabilities: Type 1 diabetes, reactive attachment disorder, bipolar disorder, high-functioning autism, ADHD, anxiety, PTSD and depression.
Categories: Family Support
As parents, the work of assuring our child feels safe, secure, and valued at home, school, and in the community is challenging and full of risks. In Sandra Kaufmann’s book, she shares relatable ordeals and hard decisions their family had to make for their daughter with disabilities.
Categories: Family Support
I have learned that not everyone is capable of providing emotional support to parents of children with disabilities. There is limited help available with the day-to-day struggles associated with managing time, appointments, and responsibilities.
Categories: Family Support