There is a song by Peter Cetera with the words "Everybody needs a little time to get away, just for a day... from each other." This statement can't be truer. Especially for those of us raising a child with a disability.
I used to feel so guilty using respite hours from my son's various programs. I thought I was such a bad mom for having someone come into my home to watch my son for a few hours. Because well, I am his mom. And I should be able to handle everything that this life throws at me.
As my son and I age, I realize that for me to keep my sanity and to keep being his advocate, using some respite hours is okay and healthy. I am very blessed to have a job outside the home that I love. I usually count that as my respite. Because for those hours, when I am away from my son and he's at school, I am concentrating on my patient's care.
Yes, I am always thinking about my son. All day long. I have my cell phone attached to my hip. Always wondering if his school nurse is going to call me because he's had another seizure. But over the years, I have learned that my work is my getaway.
Every parent must find their way to get some relief. Maybe it's an hour here or there when a family member or trusted person watches your kid. Time for you to do things, like grocery shop or do nothing at all. Sometimes, my get-away is going to Sonic. I sit there, listen to music, and drink a cherry limeade while I refresh my patience level.
Those precious hours end up making us all better parents! Make sure you are taking care of yourself.
After making the difficult decision to medicate your child, with time and on occasions, old symptoms return or new ones appear. Once again, you’re faced with what felt like an already-made decision - to medicate higher or more, or not.