Just When You Thought You Had a Moment to Breathe

Just as our family was settling into our routine a little and feeling good about where we were, another big challenge came along. It’s as if multiple disabilities weren't enough to test us. Now my son's scoliosis has reached the point of no return. That means the time has come to make the dreaded surgery decision.

Our surgeon says it's no longer really an option anymore – it’s a must! We have hoped and prayed for 4 years that my son's spinal curve would not worsen. But it has.

Things began to move quickly after we consented to the surgery. X-rays were done and we met our surgeon. We talked about the rods, screws, and cadaver bone they would insert into my son's spine.

We met with occupational therapists and psychologists. They were already finding the best way to prepare Jac for such a big surgery. They also talked with his therapists to get social stories gathered together for him.

This was just the beginning. The dear nurse was already getting our new teams of doctors to meet. She was preparing us for the many upcoming visits when Jac will transition to doctors and specialists for adults.

So just when some of our beloved medical friends would be phasing out of our son’s journey, a whole new set will be joining it. Looks like we needed to meet some new guardian angels for this next chapter of Jac's life.

Jac is just destined to keep meeting new people thanks to being so unique.

If you need information about helping your child with a chronic illness, you can find it here.