After 16 years of having a child with multiple disabilities, the good times sometimes get weighed down by the hard times. The sleepless nights, the scary illnesses, the terrible meltdowns, and the million other things that are so incredibly hard just beat you down. Before you know it, you forget that somewhere along the way, there have been precious times as well.
I have started to make a point of looking for these precious moments.
My Jac absolutely loves to try to fly a kite every summer. It's the cause and effect thing. Every year we try. And every year he gets closer to doing it on his own.
He received a new kite from the Easter Bunny and we had a chance to try it out. And it is the perfect kite. It flies with great ease and Jac was able to get it up all by himself a few times. I was so excited that I recorded it. Now we watch it over and over on my phone together.
Since starting his Behavioral Therapy, he has been working on sitting for activities and taking turns, so we have started trying to play Candy Land. We are still in the early stages, but it's a start. I forgot how fun Candy Land really was. Jac loves to see Mommy get the peppermint card and have to slide all the way back to the bottom of the trail.
The precious moments come in all different sizes and shapes. At night, hearing him say, “I love you” to the sun and the moon. Or watching him watch himself in the mirror dancing. I love them all.
Thank you, Jac, for many precious moments!
After making the difficult decision to medicate your child, with time and on occasions, old symptoms return or new ones appear. Once again, you’re faced with what felt like an already-made decision - to medicate higher or more, or not.