The last few weeks have been a whirlwind—with chaos thrown in. My husband’s seizures have taken a turn for the worse. He has been having up to 4 or 5 a day. Testing, doctors, and driving have been our daily life. It is exhausting.
We recently found out that he will need to have brain surgery. We have started on the insurance paperwork and figuring out all the different doctor appointments. Life didn’t stop when this new obstacle popped up. My son still needs his daily therapy and weekly doctor appointment. My daughter has homework and reports due. Clothes must be washed. The dog fed. The bills paid.
My mind is still playing over and over what the doctor told us: “There is a mass rapidly growing in his brain.” As I wait in line at the school to pick my daughter up or sitting in the doctor’s office waiting for them to call my son, I keep hearing it. I put a smile on and go about doing what must be done.
At night when everyone is asleep, my husband and I sit and talk about what could or might happen and try to make a plan.
As the initial shock wears off and we begin to make this our new normal, it amazes me how many times our normal has changed over the years. At times, I didn’t think we would get through the hardship, but we did. As I look back, I see how each obstacle has strengthened our relationship and our family. This too will strengthen us!
It is so important to have a plan for your children’s future. Here is lots of information to help you get started.
Here is one mom’s advice on being prepared for the unexpected.
I think you need to go through some stuff to really appreciate life and understand what it means to persevere, overcome and have faith. I think those tough times make you a stronger person.
- Judith Hill
After making the difficult decision to medicate your child, with time and on occasions, old symptoms return or new ones appear. Once again, you’re faced with what felt like an already-made decision - to medicate higher or more, or not.