There are several organizations that can help with financial needs for families in the Austin-area. Some are local, some are statewide, and some are across the country. Hopefully, some may be able to help you.
First up, let’s talk about a grant program available to families across the US. United Health Care Grants will give up to $5,000 for some cases. There is a lot of paperwork, and it is income based. However, that does not mean you have to be on SSI to apply. You can find more details and apply here.
There are 2 organizations that focus on supporting Texas families. Variety offers grants up to $5,000. They have different categories that they support. You can find more details and the application process here.
The other grant program available is specific to the 4 Points area of Austin (certain zip codes). If you live in this area, Hill Country Special Needs Alliance may be able to help with different needs. They have been known to cover nonstandard therapy, as well as camp, equipment, and many other medically necessary items that insurance does not cover. Find out more about the area they cover and how to apply.
If the grant programs don’t work out, maybe you would consider used equipment. Many organizations find items that have been outgrown or are no longer needed. They match them up to families like your own who need them and are having a hard time getting them covered: Parker Lee Project and Project Mend.
One last suggestion is to look on Facebook. There are groups where people will post ISO (in search of) and list items they need. Or you can find items posted as FFS (Free for Shipping) that the seller will send you if you can cover shipping. There are lots of these groups. The best way to find them is to search for "medical supply exchange.” You can then request to join any that come back in your search. These groups may be local, nationwide or even worldwide. Some are specific to a diagnosis or type of equipment, too.
Here is more information on grants and financial assistance.
After making the difficult decision to medicate your child, with time and on occasions, old symptoms return or new ones appear. Once again, you’re faced with what felt like an already-made decision - to medicate higher or more, or not.