A birthday can mean a lot more than just being a year older. For children with special health care needs, a birthday can be a victory. For my daughter, Casey, birthdays were HUGE. They still are.
Categories: Family Support
We cross paths with many people day-to-day. Sometimes I can tell that someone may want to ask a question, or just say hello, but they don’t. Hopefully, these suggestions can help to break down some barriers and help others approach families of children with disabilities with more ease and understanding.
Categories: Family Support
As a parent of a child with a disability, we often must learn little tricks to get things done and some can be total game changers. Here are a few tips to help in the day-to-day challenges many of us face.
Categories: Diagnosis & Health Care, Family Support
Communicating with your child’s doctors, nurses, therapists, etc. is always important. When talking about things your child needs or dealing with issues you feel may be harmful for your child, it’s easy to get emotional. Being able to build a healthy relationship with your child’s care team and communicate openly and honestly is key. Here are a few tips that may help.
Categories: Diagnosis & Health Care
Right after losing a child, everyone rushes to comfort the grieving parents. Eventually, most people have to get back to their lives, but the parents continue to grieve. Here is a glimpse into some of the emotions, struggles and triumphs shared by one grieving mother.
Categories: Family Support
It can be easier said than done, but focusing on the "cans" and "haves" as opposed to the "cannot" and "don't haves" can make a huge difference in everything you do.
Categories: Family Support
There are some things you expect to deal with when your child has special health care needs, but some things take you by surprise. One thing that took us by surprise was body odor.
Categories: Family Support
After becoming a parent to a child with special health care needs, a lot changes. Some of these changes include your friendships and relationships with people outside of your home. You make some new friends, but sadly, some relationships don’t survive. In some cases, relationships can even become toxic. Here are some tips and suggestions for nurturing healthy relationships and what to do with those that are not.
Categories: Family Support
Parents of children with special health care needs or disabilities can feel isolated and lonely. For many reasons, over time, close relationships can grow further and further apart. Until one day you realize you have become a total stranger.
Categories: Family Support
Planning for final arrangements is not something any of us want to do, but for some us, it may be something that we need to give at least a little thought. The fewer decisions you have to make at that time in your life, the better.
Categories: Family Support