Here are some tips to make sure that if this is a call you do have to make, everything goes as smooth as possible.
Categories: Diagnosis & Health Care, Family Support
Let your friends and family know what to send when you're at the hospital—and how to pack your own hospital survival kit.
Categories: Family Support
There are lots of things to consider when packing your child’s go bag. Here are a few ideas to help you determine what you bag needs to contain.
Categories: Diagnosis & Health Care, Family Support
After becoming a parent to a child with complex medical needs, our fantasies change. Instead of dreaming of far off islands and sunny beaches, we find ourselves dreaming of a full night’s sleep in our very own bed.
Categories: Family Support
What happens if traditional respite doesn’t work for us? How do we, as caregivers, still find a way to recharge? Sometimes respite looks very different from one family to another.
Categories: Family Support
Breast milk is liquid gold and everyone is aware of the many benefits it provides babies. There are a lot of moms that either can’t produce any, enough, or maybe their baby cannot tolerate breast milk. These moms are doing the best they can and we need to stop shaming moms for not breast feeding and support each other.
Categories: Diagnosis & Health Care, Family Support
We have all found ourselves, at one point or another, comparing our child or our situation to another. The grass is always greener and you want what you can’t have—all phrases we have heard. Sometimes we must remind ourselves that we are all doing the best we can and we need to support one another and focus on the similarities, not the differences.
Categories: Family Support
Jealousy is a natural human response. In the disability community, we find ourselves feeling jealous over things we may have once taken for granted. You may be surprised to know that all of us feel them.
Categories: Family Support
While gifts are never required and rarely expected, sometimes we want to do something special for the amazing people that help with our child’s care. Trying to find just the right gift or a gift idea for many people without breaking the bank can be a challenge. Here are some great ideas for all budgets.
Categories: Family Support
Finding resources, support, and other services we need to help our children with disabilities can be very challenging. Often when we do find an organization or service, we think we’re the last to hear about it. It’s easy to see other families and assume they know all about that great support group you found, or Medicaid waivers, or whatever. Many times, they don’t.
Categories: Family Support