Most people hear the term PTSD and think of soldiers returning from war. But having a child in the NICU/PICU can result into PTSD, too. Here are some common symptoms of PTSD and suggestions for getting help.
Categories: Diagnosis & Health Care, Family Support
After my daughter passed away, I also lost my own identity and purpose in life. How do you go forward from there?
Categories: Family Support
Having a medically complex child is VERY expensive. Here is a story of how one family manages financial challenges.
Categories: Family Support
A review of the new ABC sitcom, Speechless—what the show is doing right and what the show is missing.
Categories: Family Support
With every new diagnosis and symptom, there is often additional equipment. What do you do with it all? Here are a few ways one mom has found to hide a few things and keep her home looking like a home.
Categories: Diagnosis & Health Care
Starting home health services is sometimes an emotional process because, as parents, we believe that we can care for our child better than anyone and that we should be the one caring for them. However, some of us need help because of the complexity of our child’s needs.
Categories: Diagnosis & Health Care
Most people have 5 years to prepare for their child to enter kindergarten. If your child needs special education, you are thrown into the school system when your child is only 3. What should you expect, and how can you prepare?
Categories: Education & Schools
Having another baby after having a child with special health care needs is a huge decision. Each person needs to focus on what is best for their families and not what everyone else thinks. The only people that matter when making that choice is you and your partner.
Categories: Family Support
No one knows the right things to say, or not say, to a person after they have lost a child. I have been there myself, and when lost for words, we all go with the only thing we know to say, “I am so sorry for your loss.”
Categories: Family Support
Palliative care is about making the most out of life while supporting complex patients and their family. I am so glad we found them.
Categories: Diagnosis & Health Care, Family Support