Getting a wheelchair for your child can be a long process, but so worth it.
Categories: Diagnosis & Health Care, Family Support
There are lots of things to consider when packing your child’s go bag. Here are a few ideas to help you determine what you bag needs to contain.
Categories: Diagnosis & Health Care, Family Support
What it's like to experience the lack of a medical home—and how one could help.
Categories: Diagnosis & Health Care
Financial planning for your children includes writing wills, planning for guardianship, and establishing a Special Needs Trust.
Categories: Transition to Adulthood
Privacy and dignity are important values to honor and protect. They are as important to children with disabilities as anyone.
Categories: Family Support, Transition to Adulthood
When you have a child with a medical complexity, you eventually gain the ability to calmly assess a medical necessity.
Categories: Diagnosis & Health Care, Family Support
Parents of children with disabilities are often conditioned to fight first, so we expect conflict at our school meetings. But maybe that’s not a fair place for us to start.
Categories: Education & Schools
My son has multiple diagnoses which we knew and understood. Now he has a new one. His diagnoses don’t define him, but they are a big part of who he is.
Categories: Diagnosis & Health Care, Family Support
After becoming a parent to a child with complex medical needs, our fantasies change. Instead of dreaming of far off islands and sunny beaches, we find ourselves dreaming of a full night’s sleep in our very own bed.
Categories: Family Support
Self-Care and independence go hand in hand. Parents’ role in teaching their child self-care skills is important to developing their independence.
Categories: Transition to Adulthood