When your child is admitted to the Pediatric Intensive Care Unit (PICU), it is a stressful time. The environment and care level is just that, intensive. The rules are different and take some learning and adjustment.
Categories: Diagnosis & Health Care
A birthday can mean a lot more than just being a year older. For children with special health care needs, a birthday can be a victory. For my daughter, Casey, birthdays were HUGE. They still are.
Categories: Family Support
There is no truer statement than "You don't know what you don't know." But what is the impact of not knowing? If your child has a disability, the value of knowing what you don't know could be life changing!
Categories: Education & Schools
My young son had multiple psychological diagnoses and his behaviors were out of control.
Categories: Family Support
Planning in advance for your child's Admission, Review, and Dismissal (ARD) meeting may make the process go more smoothly and make you feel more comfortable as your child's school advocate.
Categories: Education & Schools
Everything seems like a battle to me. A frustrating, on-going battle. Is it and why?
Categories: Family Support
Our son has a long list of diagnosed conditions and some only came about because of our pursuit to find answers.
Categories: Diagnosis & Health Care, Family Support
We cross paths with many people day-to-day. Sometimes I can tell that someone may want to ask a question, or just say hello, but they don’t. Hopefully, these suggestions can help to break down some barriers and help others approach families of children with disabilities with more ease and understanding.
Categories: Family Support
There is no right or wrong way to grieve. It gives no warning and has no timetable. Learning to live with it takes time. Here is one mother's experience.
Categories: Family Support
If you have a child with special health care needs and a typically developing child, then you have probably already discovered that we continually mourn the “loss.”
Categories: Family Support