After my daughter Casey passed away in 2016, I knew that life would never be the same. I understood that there would be good days and bad days. I also totally expected different things to trigger emotions. Some of the triggers I never saw coming though.
Categories: Family Support
Some people refer to their close friends as their "tribe" or their "extended family." In the disability world, I have heard moms refer to each other as "sister by circumstance." Regardless of what you call them—even if you have nothing else in common other than your kids—having another mom who gets it is so important.
Categories: Family Support
Medical supplies are a funny thing. Some items we get with ease and they start to pile up. Others seem near impossible to get our hands on. Here are some tips to help make sure that your child has the supplies they need.
Categories: Diagnosis & Health Care, Family Support
We are all great at following doctor’s orders, making all the needed appointments, filling the medications, doing everything and then some for our kids. When the tables are turned, and we become the patient, things change.
Categories: Family Support
We all know the struggles of getting insurance to cover the standard treatments, but what happens when you chose something not standard? Here I share our adventures with Hyperbaric Oxygen Therapy (HBOT) – a very Nonstandard treatment option.
Categories: Diagnosis & Health Care
Sometimes when you are out of the house with a child who has a disability, you may feel like you are packing for a weeklong trip when you are really only going to be out for the afternoon. Here are some tips to make outings a little easier.
Categories: Family Support
There are a lot of very entertaining medical movies and TV shows. A lot of them use words and equipment that make you think that it is accurate. While some things may be exact, not everything you see is correct.
Categories: Family Support
Regardless of where you are in your journey with a child who has medical needs, you will come across challenges. And you will meet people who will forever change the way you see the world. You may even be one of those people to another parent.
Categories: Family Support
If your child is in any type of therapy, you hear many suggestions on therapy tools. But most are not covered by insurance. Here are some budget-friendly, easy-to-do, do-it-yourself therapy tool ideas to help you save money.
Categories: Family Support
Hopefully, you are receiving services or on the interest lists for one of the many Medicaid Waiver programs. Have you heard of HIPP? This is a great program that a lot of people don’t know about.
Categories: Insurance & Financial Help