Making the decision to use medication to help manage our child’s disabilities was a complex decision. A hard decision to make. There are advantages and risks. For our son, it has made a huge difference.
Categories: Diagnosis & Health Care, Family Support
Life lessons one mom learned from being her daughter’s mother and caregiver.
Categories: Family Support
The concept of self-determination should be fostered in people with disabilities. Everyone should have a voice and choice in life.
Categories: Family Support
What is guardianship? Are there other options? One parent shares her emotional response to learning about guardianship and the many alternatives.
Categories: Transition to Adulthood
After my daughter Casey passed away in 2016, I knew that life would never be the same. I understood that there would be good days and bad days. I also totally expected different things to trigger emotions. Some of the triggers I never saw coming though.
Categories: Family Support
Some people refer to their close friends as their "tribe" or their "extended family." In the disability world, I have heard moms refer to each other as "sister by circumstance." Regardless of what you call them—even if you have nothing else in common other than your kids—having another mom who gets it is so important.
Categories: Family Support
When we changed my son's daily routine, I had to seek out some comfort and stability. Here's how I did it.
Categories: Family Support
What I wish I could've told myself when I was the parent of very young children.
Categories: Family Support
Our children depend on us to care for them every day. So we have to stay healthy. Here are some things I do to care for myself.
Categories: Family Support
Our doctor sent orders to get some new testing on my son. I called over to the office where the testing would be done, to set up the appointment. Boy, what an ordeal!
Categories: Diagnosis & Health Care