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Ben’s Friends is a network of safe and supportive patient communities for anyone affected by a rare disease or chronic condition. Recognized as a 501©(3) non-profit, Ben’s Friends is a grassroots organization run by patients for patients. It is not a top-down, “expert advice” experience but a community offering peer to peer support. The value of this approach is evidenced by our hundred volunteer moderators, who are either patients themselves or relatives of patients, who believe in the mission and are willing to invest their time and share the knowledge and insights they have gained with members arriving daily in need of help.
Servicio solo disponible en línea
| Tipo de organización | Other |
|---|---|
| Categorías | Disability Specific, Emotional Support, Social Media |
| ¿Servicios ofrecidos en Español? | No |
| ¿Boletín de noticias? | No |
| ¿Cuidado de niños disponible? | No |
| Rango de edad | All ages |
| Categorías de discapacidad | Genetic Disorder, Medical Condition, Mental Health Disorder, Physical Disability |
| ¿Esta organización se pertenece a todas discapacidades? | No |
| Esta organización se pertenece a estos diagnósticos | Comunicación Interauricular (CIA) |
| ¿Es un servicio estatal? | Yes |
| Sitio Web | atrialseptaldefectsupport.org |
| Nombre del contacto | |
| Correo electrónico | |
| Numero de teléfono |
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