Biliary Atresia Network is an online support group for families who are dealing with the pediatric liver disease, biliary atresia pre or post transplant. Members will share stories, seek support, ask questions, pray together or just talk. This group is open to all families, friends and medical professionals who care for children with biliary atresia. Please join us!
Biliary Atresia Network is afflilated with the Children's Liver Association for Support Services, C.L.A.S.S. C.L.A.S.S is a international nonprofit organization for people affected by pediatric liver disease. They have an online community for support, educational materials and other resources, and C.L.A.S.S. also offers financial help for those need. To find out more about C.L.A.S.S. visit their website at http://www.classkids.org.
The BA Network was founded in 2001 by Laurie Johansen. Laurie's daughter Ashley (born in 1998) has biliary atresia. If you have any questions about the BA Network, please contact Laurie at [email protected].
, TX
Ubicación accesible: No
Tipo de organización | private facebook group |
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Categorías | Disability Specific, Emotional Support, Social Media |
¿Se ofrecen servicios en Español? | No |
¿Tienen boletín informativo? | No |
¿Cuidado de niños disponible? | No |
Rango de edad | Todas las edades |
Categorías de discapacidad | Medical Condition |
¿Esta organización incluye todas las discapacidades? | No |
Esta organización incluye estos diagnósticos específicos | Atresia Biliar |
¿Es un grupo de padres estatal? | yes |
Sitio Web | https://www.facebook.com/groups/BiliaryAtresiaNetwork |
Nombre de la persona de contacto | |
Correo electrónico | [email protected] or [email protected] |
Número de teléfono |
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