22q Central provides education for the medical community on 22q Deletion Syndrome / VCFS / DiGeorge Syndrome, provides support for affected families, resource support and support groups.
Chromosome 22 Central is a parent run support organization started in 1997 with just a handful of families who had children with what is now known as Emanuel Syndrome. Currently supporting over 2000 families in all corners of the world, who have many different chromosome 22 disorders.
Early on, the Internet was in its infancy, and 22q Central connected mainly by email lists. With social networking today, it is so easy to go on-line and instantly find supportive families who can help you.
22q Central offers basic information on the main chromosome 22 disorders on the website, but mostly they are about connecting and learning from each other on Facebook. You'd be amazed what parents can learn from each other. There is a wealth of information between us all.
22q Central is happy to advertise studies from researchers. You can click on the top tab to see which current studies you might be able to participate in.
22q Central receives no formal funding to support this website. All of our support comes from the generosity of our members.
Servicio solo disponible en línea
|Tipo de organización||Nonprofit (501c3)|
|Categorías||Advocacy, Conferences, Disability Specific, Emotional Support, Health & Fitness, Medical, Trainings|
|¿Servicios ofrecidos en Español?||No|
|¿Boletín de noticias?||No|
|¿Cuidado de niños disponible?||No|
|Rango de edad||All ages|
|Categorías de discapacidad||Genetic Disorder, Medical Condition|
|¿Esta organización se pertenece a todas discapacidades?||No|
|Esta organización se pertenece a estos diagnósticos||Síndrome de DiGeorge, Síndrome de deleción 22q11.2|
|¿Es un servicio estatal?||Yes|
|Nombre del contacto|
|Correo electrónico||[email protected]|
|Numero de teléfono|