The cleft/craniofacial advocates
Services include referrals to qualified cleft/craniofacial teams, access to educational materials about these medical conditions, emotional support for affected individuals and their families, a campaign to promote general public awareness about facial differences and the networking of individuals and families for support purposes
Programs also include support networks for Crouzon, Goldenhar and Treacher Collins syndromes.
Pathfinder Outreach Network - If you'd like to speak with someone who has traveled this path and can offer support, understanding and information on resources in your area, let us know. We'll match you with a Pathfinder Outreach Network volunteer who can assist you.
Help Others - If you're interested in serving as a Pathfinder Outreach Network volunteer, register here.
State Resource Guide - Find a cleft/craniofacial team, early intervention services, medical financing options, a list of Pathfinder outreach volunteers, and more. Recognized as the first and only nationwide cleft/craniofacial resource of its kind, serving all AmeriFace programs.
Family-to-Family Connection - Meet families from all over the United States and other parts of the world. Ask questions, share experiences, make new friends! See our other on-line networking opportunities!
Free Newsletter - Subscribe now and stay up-to-date with our network families, Pathfinder activities and other special events throughout the country, including the North American Craniofacial Family Conference (NACFC)!
Resources - A one-stop page connecting you to feeding and nutrition supplies, Pathfinder Partner Organizations, travel/lodging assistance, post-operative supply manufacturers, and much more.
Photo Gallery - Over 300 smiling faces will greet you in our Photo Gallery and it's growing all the time! Follow the simple instructions on the main gallery page to be included in these albums.
Featured Families - Families share their inspirational stories.Inspiration - Little tidbits we've found here and there to make you smile.
Publications - A list or books, pamphlets and booklets from a variety of sources.
Resource Bank - AmeriFace maintains a limited supply of specialty feeding devices and arm restraints for distribution. Contact us for more information.
PO Box 751112
Las Vegas, 89136, TX
Ubicación accesible: No
|Tipo de organización||online|
|Categorías||Disability Specific, Emotional Support|
|¿Se ofrecen servicios en Español?||No|
|¿Tienen boletín informativo?||yes|
|¿Cuidado de niños disponible?||No|
|Rango de edad||Todas las edades|
|Categorías de discapacidad||Physical Disability|
|¿Esta organización incluye todas las discapacidades?||No|
|Esta organización incluye estos diagnósticos específicos||Anomalías Craneofaciales, Síndrome de Goldenhar (displasia óculo-aurículo-vertebral), Labio leporino y paladar hendido|
|¿Es este un servicio estatal?||yes|
|Nombre de la persona de contacto|
|Correo electrónico||[email protected]|
|Número de teléfono||888-486-1209|
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