The Equipment and Supply Exchange Program has been designed to help fulfill the equipment or supply needs of children any kind of Leukodystrophy, as well as help families place equipment and supplies that are no longer being used.HHF will cover the shipping cost to place the equipment with the family in need.
Also offered is the Ralph C. Wilson, Jr. Wish Gift Program (formerly known as Hunter's Wish Gift) which helps families who face extreme financial stress attributed to the costs associated with caring for a child with Krabbe or another leukodystrophy. Requests are granted on a case-by-case basis and are limited to meeting needs that will enable an affected family to provide the best possible care for their child. Many times families come to the Foundation for assistance with a unique need – travel expenses associated with treatment, a wheelchair lift to enable a family to safely travel with their child, or assistance in purchasing a vehicle to accommodate their child’s equipment needs.
Servicio solo disponible en línea
|Tipo de organización||Nonprofit (501c3)|
|Categorías||Disability Specific, Emotional Support|
|¿Servicios ofrecidos en Español?||No|
|¿Boletín de noticias?||No|
|¿Cuidado de niños disponible?||No|
|Rango de edad||All ages|
|Categorías de discapacidad||Genetic Disorder|
|¿Esta organización se pertenece a todas discapacidades?||No|
|Esta organización se pertenece a estos diagnósticos|
|¿Es un servicio estatal?||Yes|
|Nombre del contacto|
|Correo electrónico||[email protected]|
|Numero de teléfono||716 667-1200|