Rettsyndrome.org

International Rett Syndrome Foundation mission is to accelerate full spectrum research to cure Rett syndrome and empower families with information, knowledge, and connectivity. We advocate and raise awareness about Rett syndrome so the scientific and medical community, policymakers, educators, caregivers, and the general public can more thoroughly know, understand, and be motivated to help the research efforts and individuals living with Rett syndrome on a daily basis."

We remain focused on accelerating research to treat and cure Rett syndrome as we empower families with information, knowledge, and connectivity.

They can help provide Parent-approved resources for Rett families, Rett Syndrome Handbook containing all the information you need for your journey- available  in PDF version,  Get 1:1 Support and connect with a parent volunteer to learn about the resources in your area. 

Localización

4500 Cooper Road, Suite 204
Cincinnati, 45242, TX

Ubicación accesible: No

Detalles

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