Sickle Cell Thalassemia Patients Network

SCTPN seeks to diminish the negative social, psychological, and economic impact these debilitative disorders have on our community.

SCTPN, a 501 (c)(3) tax-exempt organization, provides education, advocacy, referral services, and support for individuals and families living with sickle cell disease (SCD), thalassemia (Cooley’s Anemia), and other inherited blood disorders. 

GOALS

• To collaborate with other community organizations, healthcare providers as well as public and government agencies to increase public awareness of inherited blood disorders.
• To advocate for increased funding to establish more comprehensive treatment programs throughout New York State, support additional research to find more effective medicinal therapies and treatment to manage the chronic symptoms of SCD and related complications.
• To support research to find a viable cure for all people living with hemoglobin disorders.
• To build a strong coalition of organizations, agencies and other stakeholders that will allow for the expansion of our collective missions and visions.

Localización

1139 St. Johns Place
Brooklyn, 11213, NY

Ubicación accesible: No

Detalles

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