United Mitochondrial Disease Foundation provides education, resource information, support groups and awareness events for persons who are affected by mitochondrial disease and their families.
Patient and Family Support-
Members of the UMDF are able to network with other families and individuals to talk about mitochondrial disorders. The UMDF keeps members updated with the latest treatment advances and information through a quarterly newsletter. UMDF members are able to find support on the local and regional level through various chapters, groups and ambassadors. Click here to connect with UMDF.
Since 1996, the UMDF has provided more than $11 million in grants to support the research that may lead to a less invasive diagnosis and ultimately a cure. Click here to learn more about UMDF Research efforts.
Information and Communication-
The UMDF maintains this website to provide the latest news and information about issues relating to mitochondrial disease research and information. The UMDF also holds an annual international symposium that brings together the best physicians and researchers for patients and family members to gain valuable information. The UMDF also provides information about local fundraisers and educational programs. The UMDF advocates on the national level and empowers members to advocate on the local level regarding issues of medical funding and children’s health issues as well as social services for the medically fragile and disabled.
Servicio solo disponible en línea
|Tipo de organización||Nonprofit (501c3)|
|Categorías||Advocacy, Camp, Conferences, Emotional Support, Equipment, Financial, Health & Fitness, Medical, Prescription Assistance, Recreation, Resource/Lending Library, Social Media, Trainings|
|¿Servicios ofrecidos en Español?||No|
|¿Boletín de noticias?||Yes|
|¿Cuidado de niños disponible?||No|
|Rango de edad||All ages|
|Categorías de discapacidad||Genetic Disorder, Medical Condition|
|¿Esta organización se pertenece a todas discapacidades?||No|
|Esta organización se pertenece a estos diagnósticos|
|¿Es un servicio estatal?||Yes|
|Nombre del contacto|
|Correo electrónico||[email protected]|
|Numero de teléfono||888-317-8633|